Governance & Transparency
We operate on a 100% charitable mandate. Treatment complexity does not dictate cost to the patient.
Our Model: Non-Profit, High-Tech
GTF operates under a 100% charitable mandate. This initiative is structured to ensure that the complexity of the treatment does not dictate its cost to the patient. We combine rigorous clinical standards with transparent, donor-driven funding.
Funding & Sustainability
We rely on a mix of sustainable funding sources:
- Global crowdfunding platforms (e.g. GoFundMe)
- Institutional and research grants
- Private philanthropy
- CSR partnerships
Accountability
- Centralised digital patient registry — Secure, outcome-based tracking of patients and screening data.
- Transparent reporting — To donors and trustees so that every contribution is accounted for.
- Outcome-driven performance — We measure success by real-world impact: cure rates, screening coverage, and reduction in new births.
Legal & Charitable Structure
Global Thalassemia Foundation is registered as a charity (UK – pending). We are committed to full compliance with applicable laws and best practice in governance.
Trustees & Leadership
Our board and leadership structure will be published here as we formalise our governance. We are building a team of trustees with expertise in medicine, public health, and non-profit management.
Policies & Safeguarding
Policies on safeguarding, data protection, and financial controls are being developed and will be made available in line with regulatory requirements.